Saturday, June 23, 2012

Scanxiety, That Is What It's Called


source


Last March, I was told that CT Scans are going to be an annual thing for me. Initially (c. 2009), I thought it was just going to be something that I would be doing for 3 years (or 5 years tops probably) while we are monitoring for recurrences. But my doctor explained that due to the rarity of Phyllodes, scans are the only way we can ever catch recurrences and mets at the onset. By that, she went to confirm that it is going to be a lifetime thing. I don't really mind. I'm just glad (and very thankful) my current job gives me the opportunity to somehow afford this very costly procedure by providing me with a good health insurance coverage. 

Yes, I don't really mind doing this every year because I know how IMPORTANT this is for me. But the thing is -- this whole procedure scares the sh*t out of me. ALWAYS. Apart from [forever] hating that weird smell the minute I step into the hospital's radiology section (well, fact is i could never even get used to the disinfected smells of hospital what more in this part of it), what I hate most is getting that large dose of dye contrast into my small (yes, i'm still small! lol) body. You see, I am allergic to contrast agents and yet I usually get injected with 120-150cc's of this dreaded thing. The first 3 scans I had sent me puking my guts out. It left me overly traumatic. I only do this once a year but every time I sign the paperwork and get myself prepared for the procedure I'd almost always feel like I'm on the verge of a heart attack. And it doesn't help either that I have very small veins and it almost always takes the IV therapists at least 30mins to get the heplock insertions done because they had to re-do at least 3x and I'd usually end up with hematomas in my arms. And when the machine injects that dye unto my small veins, I can't tell you how painful it is. But I can tell you though that they leave my arms sore for days. I could see the veins change their colors from bluish to purplish and when they disappear I can only assume that's the time they're finally healed.

Oral Contrast Agent (it used to be barium, i forgot to ask if it's still the same since the texture has changed. This one was not that difficult to drink since it also tasted like mineral water)
Thank God for hospital staff that were trained well on bedside manners. They always sort of give me a certain degree of comfort. In the midst of my internal hysteria, the simple reassuring squeeze of my hand or shoulder from the nurses and the resident doctors somehow gives me a brief feeling of peace and turmoil resolution. It doesn't last long. But the breather helps. Tremendously. And so today, I'd like to offer this post [as a big, big thanks] to the doctors and nurses who heard my panic. Although, the last 2 scans that I had prior to today's turned out way better than the first 3, today's was sort of a milestone-r as well in the sense that it might just help me handle (emotionally) my future scans better. On my fourth scan (today was the 6th), one of the attending doctors opted to change the brand of the dye contrast (I'm now using the brand Iopamiro) to use on me and the puking stopped after that. I was still nauseous but it didn't send me throwing out whatever's left inside my stomach after fasting for 6 hours at least. I'm glad that doctor listened to me. One of the residents told me there's really no difference with regards to the composition of both brands they used on me except for the manufacturer but I'm just glad that helped addressed my issue. Now I need not worry about anaphylactic shocks (have I ever mentioned I eat paranoia for breakfast?). Today, the doctors added more padding to my assurance by giving me a dose of antihistamine and steriods. It's just an additional precaution they say. But you see my brain is just wired that way. The mere mention of the word precaution somehow pacifies it. So when I got inside the scan room (coming from an hour of restful sleep brought about by the wonderful Benadryl - no wonder they never sell it over the counter hehehe), I wasn't as clammy as before. And what used to be an hour long procedure was now shortened to half. I came out grinning from ear to ear. For a moment, I felt like I was a real winner. 

A few minutes before Benadryl sent me to lala-land.
I know that these concerns of mine are very trivial compared to those who went through cancer treatments. This morning was also an eye opener for me having interacted with 3 women who just finished their chemo and radiation treatments. I was actually sadder than happy today having met this women and seeing how cowardly I've behaved. I deeply apologize for that. But I just had to let this out. 

Next year, I will have to go through this again. The scanxiety might probably revisit me once again knowing that they always come in different forms (today was about vomits and anaphylactic shocks, next time it could be dreading the results who knows). But I hope I can deal with it even better knowing that today turned out great. The waiting for the results is altogether a different story but surviving today alone just makes me grateful for a lot of things. So again, thank you. THANK YOU. thank you. To all of you who told me I can do it. 

Saturday, January 14, 2012

It's Been Three Years

Yes! Today is my cancervesary. And it's been three years since that (un)fateful day, I was wheeled into the OR and got out without my left boob.

I wanted to write something longer. Just to commemorate the day. But I guess I ran out of things to say. My big plan is really just to move on. And keep praying for others who need more of it. From where I'm sitting, that's the best support that I can think of right now. Lame, lame. The first year of my diagnosis, I had a grand plan. I really wanted to promote PT awareness in the Philippines. But I was sucked into the world of motherhood, drowned in it and never got out (not that i'm complaining).

This post had been sitting in my draft folder a few days before my cancerversary. But I never got past one sentence. So now, I'm just posting what I wrote in Facebook to remember that day by.

Three years ago, I was already being prepped for surgery the next day. It will probably remain to be one of the scariest days of my life but I will keep holding on to that memory because despite the how scared I was of that day, it was also the day I realized how much I value life. 

Life is a gift. Sometimes it just takes a different perspective to see that. But it is a gift that we all should cherish and experience to its fullest. 

I just have to say this though - phuck phyllodes

If you are a PT patient and is lost and looking for somebody to talk to, feel free to join our Facebook group (group name: Phyllodes Tumors, CystoSarcoma Phyllodes, whatever it's called...) You may not find your answers but there sure is somebody in there who will listen to you and comfort you the best way they can. My PT sister Anna Wallace has a wonderful blog as well. Please go visit if you would want to read on her PT experience. Click here to visit her page.

Here is another informative article that discusses the facts and myths on Phylloides Tumors. Click here to read the article.

Friday, December 9, 2011

Holiday Health Scare Syndrome Strikes Again

I haven't been feeling my best lately. I don't know if its the lack of exercise or my body telling me something is wrong again.

Last night, the weather was kind enough to let me run. It was drizzling lightly but it was safe enough to run. So I did a 2-miler just to sweat out the toxins that have been building up for the last 2 weeks. I felt really good. I ate a very light dinner, spend an hour watching Castle with the hubby, spent about 30mins doing my holiday project then turned in at few mins past 12. I've been sleeping a lot later than my usual 9-10ish bedtime lately. I wanted to believe that's the culprit to this unusual fatigue that I've been feeling the past few days.

I know the coming week is going to be really tough for me again. I'm not supposed to see anymore doctors this December (besides the neurologist to bring back my EEG results) but I guess it really isn't time for me to take a rest on the doctor run just yet. I'm giving it another year. And then I'm going to focus on getting pregnant again.

Yes, I'm positive this isn't going to be something major (I will conquer this mentally damn it!) And that 2012 is going to be a lot better than the past 3 years. Health-wise most especially. By God's grace of course.

Saturday, October 1, 2011

The Serenity Prayer

The past few days saw me being dragged into that dark place I so hate to be in. I pray things get better soon. I pray to get my old happy self back. Soon please. For now, this prayer is on repeat.

got the full text from here
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The Serenity Prayer

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.



Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
Amen.

--Reinhold Niebuhr

Sunday, August 21, 2011

"I'm Gonna Love You Through It" - Martina McBride

A friend just shared this video and I cried buckets while watching it. I suddenly felt this overwhelming feeling of gratefulness.

Mitch, Gail, Tessa, my Phyllodes sisters over at Facebook, everyone I met in this journey who bravely shared their stories to inspire me - I am VERY LUCKY TO HAVE MET YOU. Though I'd rather really that I met you in a different circumstance (preferably one donned with a party atmosphere maybe or anywhere with good ambiance) but still not everyone gets to meet people who make you realize how lucky you are to be alive and that LIFE is something you cherish and not waste.

To friends who would constantly check on how I was doing, I am immensely thankful to have you guys around. We may have been physically separated by our present locations but you were always just there. And I may not always be vocal of how I appreciate all your concerns, but yes I DO. They keep me going.

To my ever supportive family I AM VERY GRATEFUL THAT I HAVE YOU. I do not have words to describe how thankful I am that you were always there for me. That I can count on you each time I needed emotional, financial and whatever kind of support you can imagine. I love you.


Just last night, I was putting my daughter to sleep and asked her to pray for Mommy to get better soon. I thought she didn't hear me because she was still asking for some play time during bedtime so I resigned the thought. But guess what, after covering me with a blanket (and making me believe we are still playing hide and seek), I heard her pray! She went: "Jesus, pagalingin mo Mommy ko! Thank you, Love ka ni Maia!" (Jesus please heal my Mommy, thank you Maia loves you!) I was trying so hard to keep myself from tearing up (hence, I'd scare the little lady). I am a the luckiest mom, wife, sister, daughter, friend there is.

Again, I have nothing but gratefulness for this overwhelming, unending support around me. And I know I will never get through the day without them.